I am going to put it out there so that when you read my blogs you will understand. We are a family of 5, I married my high school sweetheart :). We got married young at the age of 19, we have 3 beautiful boys all with special needs. My goal and hope is through my own experience is that I might help people who are going through similar issues. I will tell you here what my children have been diagnosed with so you can understand my blogging LOL. These diagnosis does not DEFINED who my children really are, but with them you can understand more, our boys are bright, loving, caring, polite, helpful, intelligent, funny, they are AWESOME kids 🙂 ❤❥ all they want is ACCEPTANCE, to have friends, to be loved for who they are, not what they have, not pity, UNDERSTANDING.
Ok so our twins Tyler and Travis were born premature, they have been diagnosed with, Autism, Behavior, Intellectual disability, ADHD, OCD, ODD, Anxiety, mixed Expressive receptive language disorder, sensory overload visually, and just Travis with generalized seizure disorder along with the other one I have listed, I think that all, now I will give you an explanation for all these LOL.
Autism : Autism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. Autistic disorder, sometimes called autism or classical ASD, is the most severe form of ASD, while other conditions along the spectrum include a milder form known as Asperger syndrome, and childhood disintegrative disorder and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS). Although ASD varies significantly in character and severity, it occurs in all ethnic and socioeconomic groups and affects every age group. Experts estimate that 1 out of 88 children age 8 will have an ASD (Centers for Disease Control and Prevention: Morbidity and Mortality Weekly Report, March 30, 2012). Males are four times more likely to have an ASD than females.
Intellectual Disability : An intellectual disability (also commonly referred to as a developmental disability among other terms) is, simply stated, a disability that significantly affects one’s ability to learn and use information. It is a disability that is present during childhood and continues throughout one’s life. A person who has an intellectual disability is capable of participating effectively in all aspects of daily life, but sometimes requires more assistance than others in learning a task, adapting to changes in tasks and routines, and addressing the many barriers to participation that result from the complexity of our society.
ADHD: (Attention deficit hyperactivity disorder) is a problem with inattentiveness, over-activity, impulsivity, or a combination. For these problems to be diagnosed as ADHD, they must be out of the normal range for a child’s age and development.
OCD: (Obsessive-Compulsive Disorder) is an anxiety disorder that is associated with obsessions and compulsions. Which is part of Autism.
ODD: (Oppositional Defiant Disorder) ok this one made me laugh as I thought all children where defiant but there is actually a disorder for it, here are the signs of it,
- Temper-tantrums, even over small disagreements, very upset when they don’t get their own way.
- Argues with adults, especially with those in authority.
- Defies or deliberately refuses to follow rules or directions given by adults.
- Deliberately annoys people, continues a behavior after being asked to stop several times (e.g., touching things, saying something, making sounds, etc.).
- Blames others for his or her mistakes or misbehavior.
- Seems touchy or easily annoyed by others.
- Seems angry and resentful much of the time, walks around with a “sour-puss” much of the time.
- Often wants to “even the score” with others, is spiteful toward others.
Mixed Expressive Receptive Language Disorder: Mixed receptive-expressive language disorder is diagnosed when a child has problems expressing him-or herself using spoken language, and also has problems understanding what people say to him or her.
Sensory Over Load : is also known as sensory overstimulation; it occurs when sensory experiences from the environment are too great for an individual’s nervous system to successfully process or make meaning from the sensory experience. A common example of this is a carnival/fair including the smell of barn animals and food, sound of other screaming children, amusement rides, and buzzers from games, car engines revving, touch stimuli from bumping into people within a crowd, the visual input of fast paced movement including blinking lights, fast-moving rides, people and cars etc. In this example there is an abundance of sensory experiences entering the carnival goers nervous system all at once, which commonly leads to shut down, tantrums, or other negative behaviors that are associated by an overwhelmed nervous system (or sensory overload) that can not efficiently process the smell, sound, taste, touch, sight, and movement of the environment all at once. There are many symptoms that occur when a child or adult is suffering from sensory overload and they include the following :• Tantrums for no apparent reason.
• “Shutting down” refusing to participate in activities or interact with others.
• Avoids touching or being touched by objects and people.
• Gets over excited with too much to look at.
• Covers eyes around bright light.
• Has poor eye contact.
• Covers ears to close out sounds or voices. Complains about noises, such as vacuum cleaners, that do not bother others.
• Inability to focus on an activity.
• Jumps from one activity to another, never fully being able to complete a task
• Irritation from shoes, socks, tags, or different textures
• Over-sensitivity to touch, movement, sights, or sounds
• Difficulty with social interactions.
• Unusually high or low activity level.
Ok know if your still with me that is just for our twins our youngest Brandon who is 15 years old, has been diagnosed with, Intellectual Disability, Anxiety Disorder, Mixed Receptive Expressive Language Disorder, Major Depressive Disorder, Psychosis NOS (not other wise specified) this is a new one he was just diagnosed with, we are still going through testing with him to find out the underlying causes to behaviors, and other things that have been going on with him. Below I have copied a definition to this as we are still learning and really will always be.
Psychosis NOS: is a symptom or feature of mental illness typically characterized by radical changes in personality, impaired functioning, and a distorted or nonexistent sense of objective reality. suffering from psychosis have impaired reality testing; that is, they are unable to distinguish personal subjective experience from the reality of the external world. They experience hallucinations and/or delusions that they believe are real, and may behave and communicate in an inappropriate and incoherent fashion. Psychosis may appear as a symptom of a number of mental disorders, including mood and personality disorders. It is also the defining feature of schizophrenia, schizophreniform disorder, schizoaffective disorder delusional disorder, and the psychotic disorders (i.e., brief psychotic disorder, shared psychotic disorder, psychotic disorder due to a general medical condition, and substance-induced psychotic disorder).
So this is it in definition and in a nut shell, our life with our children is very busy, full of appointments, assessments, meetings, etc. We will always be learning, always be looking after our children until we can no longer do so. That is down the road but then we will have to look into placing them in a good organization, but until that time, we will keep fighting the fight for them, in our eyes they are our children and we don’t have to heart to place them in a home, they may be 18 BUT they have a mind of a 7-8 year old, its like giving up your child and we cant do it. Yes its exhausting, yes it get frustrating, but the frustration comes from getting our voices heard in order to help these children live the most normal life they can. We try our best with the services we have, the funding is small, we need a break, we need help, but we also need money to do so.
And about myself, I suffer from Fibromyalgia, osteoarthritis, herniated disks, Depression, spinal stenosis… to sum that all up CHRONIC PAIN 😛 BUT I keep going as my children NEED ME.
So in close in all this I can say, I UNDERSTAND, if you are going through all this, please realize you are not alone in the battle, family’s who are dealing with this, it’s a daily struggle and I get it as I am there as well. If you need someone to talk to I have an ear to listen, I know what its like to feel alone, the feeling that you are dealing with it all , but you’re not 🙂 I will listen, I will give advice, I will let you rant and just listen as you need to do that sometimes, god knows I have 🙂 I am by no means a professional in all these areas BUT I have the experience with my own and sometimes that what you need, understanding and acceptance with what you are dealing with.
So if I don’t blog everyday, it’s because I am spent and don’t have the energy, or the kids are home, or I am on the phone dealing with agencies, the school, etc. BUT I am always here and I pray for those who are suffering through life no matter what illness they have or what they are dealing with, that there is light at the end of the road, keep trucking along and soon you will be in that light 🙂 xoxoxo
❤❥Have a wonderful day Everyone ❤❥