Its been a bit since I have written anything its been a crazy few weeks. We just finished a 2 day assessment for the twins. This assessment is for when they are done school and turn 21, it goes by hours of support they will need to be able to live a normal life-like anyone that age. So attached to these hours will be a pot of money (hopefully) that will be able to get the supports they need to do so. So how this worked is they asked ALOT of questions about their daily life, it went from how many time you have to repeat yourself to get them to do something, to actually helping them do it. WELL I have never EVER looked at the amount of hours it would take, well let me tell you this really floored me, I can’t believe how many hours are involved in a day to support my children anyway we have to. This really puts things into prospective, and I will say no wonder why I am tired. This goes from actual promoting verbally, to physically helping, OMG are you following me so far?? Are you ready for the total hours in a day?? 24 HOURS, YEP 24. How does that add up?? Well you take if you tell them to do something 5 times and that’s 30 seconds each time, that adds up over a course of a day. I was SHOCKED, and this was only ONE child and I have 3 that I have to do this with everyday. This assessment really made us thinks and tired us out mentally…LOL..
We are glad its done and we hope that when the time comes there will be the funding for them to be able to hire someone to help them so they will be able have a job of some sort, with support as they will need it. And of course there is wait lists for these things to happen, but we have started now so I hope that when they are done school there is something we can put into place for them. They can stay in school till they are 21 which is a good thing, and after that we hope there is a program they can go to, to help fill their day. But that’s for another year to worry about, I only live one day at a time as we need to get through this day in order to move on to the next. In closing this I am going to leave you with an e-mail that was sent to me, I thought it appropriate for this blog.Have an awesome day everyone 🙂
A Blue RoseHaving four visiting family members, my wife was very busy, so I offered to go to the store for her to get some needed items, which included light bulbs, paper towels, trash bags, detergent and Clorox. So off I went.I scurried around the store, gathered up my goodies and headed for the checkout counter, only to be blocked in the narrow aisle by a young man who appeared to be about sixteen-years-old. I wasn’t in a hurry, so I patiently waited for the boy to realize that I was there. This was when he waved his hands excitedly in the air and declared in a loud voice, “Mommy, I’m over here.”It was obvious now, he was mentally challenged and also startled as he turned and saw me standing so close to him, waiting to squeeze by. His eyes widened and surprise exploded on his face as I said, “Hey Buddy, what’s your name?”“My name is Denny and I’m shopping with my mother,” he responded proudly.“Wow,” I said, “that’s a cool name; I wish my name was Denny, but my name is Steve.”“Steve, like Stevarino?” he asked. “Yes,” I answered. “How old are you Denny?”“How old am I now, Mommy?” he asked his mother as she slowly came over from the next aisle.“You’re fifteen-years-old Denny; now be a good boy and let the man pass by.”I acknowledged her and continued to talk to Denny for several more minutes about summer, bicycles and school. I watched his brown eyes dance with excitement, because he was the center of someone’s attention. He then abruptly turned and headed toward the toy section.Denny’s mom had a puzzled look on her face and thanked me for taking the time to talk with her son. She told me that most people wouldn’t even look at him, much less talk to him.I told her that it was my pleasure and then I said something I have no idea where it came from, other than by the prompting of the Holy Spirit. I told her that there are plenty of red, yellow, and pink roses in God’s Garden; however, “Blue Roses” are very rare and should be appreciated for their beauty and distinctiveness. You see, Denny is a Blue Rose and if someone doesn’t stop and smell that rose with their heart and touch that rose with their kindness, then they’ve missed a blessing from God.She was silent for a second, then with a tear in her eye she asked, “Who are you?”Without thinking I said, “Oh, I’m probably just a dandelion, but I sure love living in God’s garden.”She reached out, squeezed my hand and said, “God bless you!” and then I had tears in my eyes.May I suggest, the next time you see a BLUE ROSE , whichever differences that person may have, don’t turn your head and walk off. Take the time to smile and say Hello. Why? Because, by the grace of GOD, this mother or father could be you. This could be your child, grandchild, niece , nephew or any other family member. What a difference a moment can mean to that person or their family.From an old dandelion! Live simply. Love generously. Care deeply. Speak kindly. Leave the rest up to God! “People will forget what you said, People will forget what you did, but people will never forget how you made them feel!” If this story touched you today, please consider sharing it with others. It’s a good one and don’t we hear or read enough awful ones… that this makes a good change?